Just wanted to let you all know how much better I am feeling at the moment. Such a relief to be virtually pain free most of the time. Have helped achieve this by being disciplined with meal and medication times. I am eating and drinking much better and am a lot more relaxed and having some quality sleep time.
At the beginning of last week I was actually praying to die, now I am starting to enjoy life once again. Nicky and Paul are coming tomorrow to take me out for coffee and cake! My wheelchair and walker arrived today which will make it easier.
Long may my reprieve last ...
xx Judy
Thursday, 23 June 2016
Update
It has been a while since I last updated. A very miserable time I must say. Couldn't seem to eat anything much just a few spoonfuls of jelly or soup. I am still feeling sick and in pain. My great friend Karen has brought around a meal as has Donna, Debbie and Dawn. Karen has already sold a few of my stamp sets for me and I am really grateful for her help to declutter my craft space. My doctor and the hospice nurse have also been very supportive and of course I couldn't manage without my husband and daughters.
I have been receiving some beautiful cards from Stampin' Up girls with such lovely thoughts. Barbz Bicknell also sent a lovely box of chocolates which I wish I could eat. Perhaps later when I get my appetite back.
Everyone is so supportive and sweet. Thank you all.
I hoped this next week would be easier. I only seemed to have enough energy to get up and sit by the window then back to bed again. Not much of a life ........ But no I ended up in isolation in hospital on a drip for 4 days, brain scan, chest X-ray etc. My constipation caused by all the morphine changed to terrible bouts of diarrhoea. All combined with the shingles. No I wasn't a pretty sight!
Anyway I am now home again and have started eating and drinking again. I am on Fortasip which is a prescribed nutrition supplement and this is also helping. I have come to the decision that I will not start chemotherapy which will not cure me but only give me, if lucky, a few more months and could make me sick and upset my body. I would rather have quality of life compared to quantity. Feel so much more relaxed since making this decision. I am now starting to get home care
each day which should make life easier.
Thanks again everyone.
xx Judy
I have been receiving some beautiful cards from Stampin' Up girls with such lovely thoughts. Barbz Bicknell also sent a lovely box of chocolates which I wish I could eat. Perhaps later when I get my appetite back.
Everyone is so supportive and sweet. Thank you all.
I hoped this next week would be easier. I only seemed to have enough energy to get up and sit by the window then back to bed again. Not much of a life ........ But no I ended up in isolation in hospital on a drip for 4 days, brain scan, chest X-ray etc. My constipation caused by all the morphine changed to terrible bouts of diarrhoea. All combined with the shingles. No I wasn't a pretty sight!
Anyway I am now home again and have started eating and drinking again. I am on Fortasip which is a prescribed nutrition supplement and this is also helping. I have come to the decision that I will not start chemotherapy which will not cure me but only give me, if lucky, a few more months and could make me sick and upset my body. I would rather have quality of life compared to quantity. Feel so much more relaxed since making this decision. I am now starting to get home care
each day which should make life easier.
Thanks again everyone.
xx Judy
Friday, 3 June 2016
Radiation therapy
Thursday morning I had an appointment with the haematologist who is treating my myeloma and chronic myeloid Leukemia. Everything seems to be progressing quite well.
Thursday afternoon I had an appointment at Auckland Hospital for radiation to my spine and right hip to help relieve the pain. We just got part way along the motorway going home when I started vomiting, and vomiting, and vomiting. My poor daughter Nicky was trying to drive as well as see to me and we had to pull off the motorway. When we finally got home stripped off all my spew covered clothes, put my pyjamas on and literally fell into bed with a bucket and towels beside me. I felt a real mess what with the nausea and the pain. Had a really bad night as I couldn't keep my pills down so the pain just got worse and worse.
Friday I felt absolutely rotten all day and only slightly better today (Saturday). Nicky is here again caring for me. Not an enviable task washing all my clothes that were ruined and cleaning the inside of the car.
Two nice things happened though. My friends Debbie had made a lasagne and brought around while I was at the hospital Thursday and Karen brought a lovely bouquet of flowers around yesterday. I'm really spoilt.
Judy
Thursday afternoon I had an appointment at Auckland Hospital for radiation to my spine and right hip to help relieve the pain. We just got part way along the motorway going home when I started vomiting, and vomiting, and vomiting. My poor daughter Nicky was trying to drive as well as see to me and we had to pull off the motorway. When we finally got home stripped off all my spew covered clothes, put my pyjamas on and literally fell into bed with a bucket and towels beside me. I felt a real mess what with the nausea and the pain. Had a really bad night as I couldn't keep my pills down so the pain just got worse and worse.
Friday I felt absolutely rotten all day and only slightly better today (Saturday). Nicky is here again caring for me. Not an enviable task washing all my clothes that were ruined and cleaning the inside of the car.
Two nice things happened though. My friends Debbie had made a lasagne and brought around while I was at the hospital Thursday and Karen brought a lovely bouquet of flowers around yesterday. I'm really spoilt.
Judy
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